A person who was given a devastating prognosis which “shocked him to the core” is urging individuals to “never give up”.
Luke Lawes initially went to his GP two years in the past when he started experiencing random muscle twitches round his physique.
But after being despatched house on a number of events, being instructed it was brought on by “stress and anxiety”, the 27-year-old had a “gut feeling” one thing wasn’t proper.
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Luke, from Frodsham, who’s a eager footballer, stated when lockdown started to ease he began enjoying once more.
But each time he tried to run, he would find yourself falling over and it was then he “knew for certain something was wrong”.
He instructed the ECHO : “The doctors kept sending me home telling me there was nothing wrong and wouldn’t do any tests because I was a healthy looking lad.
“But progressively, my strolling was affected and I used to be referred to a neurologist for a second time.”
It was only in October of 2021 that Luke was diagnosed with Motor Neuron Disease (MND), at the age of 26.
According to the NHS, MND is an uncommon condition that affects the brain and nerves. It causes weakness that gets worse over time.
There’s no cure for MND, but there are treatments to help reduce the impact it has on a person’s daily life.
MND can significantly shorten life expectancy and, unfortunately, eventually leads to death.
But despite the devastating diagnosis, Luke said he wants to live his life as best he can.
He added: “I was shocked. It shocked me to the core, and I was devastated.
“The manner I see it, they offer you a brief life expectancy however a number of that’s when individuals get information like this, they simply quit of their heads.
“Look at Steven Hawkins, he lived for years after his diagnosis and I don’t think that’s a fluke, that’s the mindset, keep going.
“Don’t quit, keep optimistic and do all the pieces that you simply need to do in life.
“Even people without a diagnosis like this. People spend at least five days a week, working in a job they may not particularly enjoy and they don’t get out and live their lives.
“I’ve been given this information of a shortened life, however life is brief anyway and other people do not realise that.”
Luke said he is adapting to his new life, but struggles with certain things like walking or opening items.
He said: “It takes me just a little longer to do issues and it’s irritating simply doing easy duties however I’ve individuals to assist me.
“My girlfriend Becky has been an amazing help.
“Before I used to be recognized, I used to be getting via to the medical doctors however as a result of I’m younger and seem wholesome trying, I do a number of train, they would not do any checks.
“I’ve never been worried about my health but I had a real gut feeling something was up with me, I’ve never had that before.
“Just belief your intestine. My prognosis got here as a whole shock, it hit me like a prepare.”
Luke’s sister, Jennifer St. Pierre, who works in Liverpool, will be running the Aintree Half Marathon on February 13, with just six weeks training, in a bid to raise funds for her brother.
The fundraiser has since brought in over £9,000 of its £13,000 target, which will go towards helping Luke with treatments unavailable on the NHS and his dreams he would like to complete whilst he can.
In her fundraiser, Jennifer said: “Anyone who is aware of Luke will know him as a charismatic enjoyable loving particular person, with ardour for sport, journey, journey and life.
“Basically all of Luke’s previous interests and hobbies involve being physically active, which of course makes this diagnosis all the more upsetting as he adjusts to this new life.
“He already struggles to stroll, and his signs are progressing alarmingly shortly. His life expectancy is brief. The time earlier than he’s prone to be in a wheelchair is far shorter. This is completely heart-breaking for all of us near Luke.”
Anyone wishing to donate to the fundraiser can do so by clicking here.
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